Searchable abstracts of presentations at key conferences in endocrinology

ea0060p06 | (1) | UKINETS2018

Identifying information and support needs for patients with Merkel Cell Carcinoma

Devlin Lindsey , Catherine Bouvier

Background: Merkel cell carcinoma (MCC) is a neuroendocrine tumour of the skin. It is a rare, highly aggressive cancer with a high propensity for recurrence and an increasing incidence rate. Feedback from patients and clinicians suggests there is very little accessible MCC specific patient information and support available. To improve patient access to accurate and reliable information and support, the NET Patient Foundation are developing existing services to provide MCC spec...

ea0052p10 | (1) | UKINETS2017

Neuroendocrine Tumour (NET) patients experiences of support in the community setting across the cancer treatment trajectory

Devlin Lindsey , Jervis Nikie , Bouvier Catherine

Background: Neuroendocrine tumours (NETs) and carcinomas (NECs) are a heterogenous group of malignancies, with no common clinical pathway, but previous study has highlighted a common need for effective, well-timed support. There is geographic variation in the availability and provision of specialist NET cancer services across the UK and this is reflected in the diverse patient experiences reported.Service improvement: To improve the patients journey, the...